HealthDataNavigator Assess available data on different performance domains across various settings

Non-communicable diseases

Non-communicable diseases represent the highest disease burden in Europe. Cardiovascular diseases and cancer are the main cause of death:

  • Cardiovascular diseases are responsible for more than 38% of all deaths, mostly due to ischemic heart disease (19%) and cerebrovascular conditions (10%).
  • Cancer accounts for 28% of deaths, in particular by order: respiratory system’s cancer (5.3%), colon and rectum cancers (3.7%), breast and stomach cancers (2.1%) and prostate cancers (1.9%).
  • While respiratory diseases and diabetes represent a relatively smaller share of deaths (respectively 5.8 and 2.4%), their prevalence is high and still increasing. Amongst the leading causes of chronic morbidity in Europe, they seriously affect quality of life and utilize the largest share of resources in the healthcare systems.

Source: The global burden of disease: 2010 update

Health Status

Aggregate data

  • Austria: Statistics Austria reports on causes of death (according to ICD-10-Codes since 1970), cancer incidence (per year by localization and sex since 1983) and health status, all by region
  • Austria: ÖGIS (the Austrian Health Information System) is an instrument of health reporting organized as a geographic information system. It provides data on all epidemiological key themes (e.g. life expectancy, mortality, cancer incidence, self-reported health) pfeil zu
  • Estonia:The Health Statistics and Health Research Database collects and provides aggregate data on health care resources, providers, personnel and expenditure. 
  • Finland: Statistics Finland reports on causes of death (according to ICD-10-Codes), life expectancy and selected indicators for health status. pfeil zu
  • FinlandSOTKAnet (THL) provides data on demographic variables and healthcare provision at regional level as well as epidemiological key themes (e.g. life expectancy, mortality, cancer incidence, self-reported health)
  • Finland:KELASTO database maintained by the Social insurance institution provides annual data on drug reimbursements, sickness leave, rehabilitation and other allowances. pfeil zu
  • France: CépiDc, data on death causes from 1979 to 2010 is presented according to ICD code or chapter ("code CIM" in "Données détaillées" or "chapitre" in "Interrogation des indicateurs"); reported by the national medical research center network INSERM.
  • France: Ecosanté IRDES, disease prevalence. National longitudinal datasets from 1950 to 2010. There also exists a regional version of the same datasets which breaks down information local administrative units from 1968 onwards.
  • FranceInstitut de Veille Sanitaire (InVS), the agency responsible for epidemiological surveillance and disease control, holds registries for pathologies such as cancer.
  • Germany:HelmholtzZentrum: founder of German Myocardial Infarction register which contains a summary of data from various cardiovascular studies.
  • Germany:German Centre for Cancer Registry Data (ZfKD)- contains epidemiological data on lung, liver, breast and other cancer types on a federal level. Population-based cancer registries in each German federal state transfer data to the ZfKD, as required by the Federal Cancer Registry Data Act(Bundeskrebsregisterdatengesetz). The transferred data are combined, quality-checked, analysed and evaluated, and the results published in collaboration with the public health institutions of the federal states. The dataset is also available on regional level.
  • Germany:Association of Population-based Cancer Registries in Germany- epidemiological data on cancer with an interactive Cancer-Atlas with incidents and mortality in each federal state.
  • Germany: Robert Koch Institute- federal epidemiological centre for infectious diseases. Statistical data and reports on diseases and health problems of the German population, such as diabetes mellitus, cardio-vascular diseases, cancer and notifiable infectious diseases are also regularly published by the Federal Health Reporting System.
  • Germany:Paul-Ehrlich-Institute: founder of German Hemophilia Registry In 2007, with the financial support of the German Federal Ministry of Health, with the purpose to collect personal health data of patients (diagnostic and therapeutic data).
  • Germany: Federal Health Reporting System- data on health status and chronic diseases, respiratory diseases and allergies, etc.
  • Israel: Central bureau of statistics, mortality and cause of death data – aggregated data on adjusted and crude mortality rates by causes of death such as specific malignant neoplasms, Diabetes mellitus, Hypertensive disease, chronic lower respiratory diseases, acute myocardial infarction and more.  Causes of death derived from death certificates completed by the physician reporting the death and are coded according to ICD-10.
  • Israel: Central bureau of statistics, 2009 Health survey data – Aggregated data on chronic disease such as Hypertension, Diabetes, Asthma, lung diseases, chronic problems of the digestive system, cancer and acute myocardial infarction.
  • Luxembourg:STATEC - information on life expectancy, healthy life expectancy, diseases and causes of mortality.
  • Luxembourg:Ministry of Health - since 1967, information on death for the entire population, by age and by causes of death like diabetes, CVA, etc.
  • United Kingdom: Health Statistics Quarterly has information available on trends in health, and details the latest quarterly information on deaths, childhood mortality, cancer survival, abortions, congenital anomalies and morbidity.

Individual level data

  • Austria: Austrian National Cancer Registry is a complete census of all cancer patients treated in hospitals pfeil zu
  • Austria: the “Austrian Health Interview Survey 2006/07” provides detailed information on self-perceived health, chronic diseases and mental conditions, life quality, health impairment. The survey provides individual level and aggregate data on the type of chronic disease and the degree of impairment on daily activities due to chronic illness. pfeil zu
  • Austria: DIAG-Extranet provides administrative as well as medical data on each hospital stay, i.e. main diagnosis and additional diagnoses (both based on ICD 10) pfeil zu
  • Austria: GAP-DRG (General Approach for Patient oriented Outpatient-based DRG) is a research data base with reimbursement data for outpatient services of sickness funds (social insurance) and Federal Ministry of Health (hospital data) including chronic obstructive pulmonary disease, diabetes, cancer, coronary health disease.pfeil zu
  • Finland: Statistics Finland maintains records on the causes of death and mortality data pfeil zu
  • Finland: Finnish Cancer Registry is a complete census of all cancer patients
  • Finland: The “Finnish Health Interview Survey 2000/2011”administered by THL provides detailed information on self-perceived health, chronic diseases and mental conditions, life quality, health impairment in a periodically conducted survey.pfeil zu
  • France: Health, Healthcare and Insurance Survey (ESPS), hosted by IRDES. Self-reported health indicators (Mini European module) since 2004 and morbidity. pfeil zu
  • France: ENTRED is the surveillance system on diabetes which surveyed 10000 people in two rounds (2001-2003 and 2007-2010). Health status of people with diabetes.
  • Germany: GEDA (German Health Update survey) - a telephone health survey that took place in 2009, 2010 and 2012 and focused on chronic diseases, health related behavior, socio-demographic characteristics, vaccinations etc. pfeil zu
  • Germany: KiGGS (German Health Interview and Examination Survey for Children and Adolescents) – a project funded by the Federal Ministry of Health (BMG), the Federal Ministry for Education and Research (BMBF), and the Federal Ministry of Food, Agriculture and Consumer Protection (BMELV) to study the health of children and adolescents between 0 and 17 in Germany between 2003 and 2006. pfeil zu
  • Germany: DEGS (German Health Interview and Examination for Adults) - representative data on the health status, health-related behavior, healthcare and living conditions of adults residing in Germany between 2008 and 2011. pfeil zu
  • Germany:DAK Gesundheitsbarometer: regular surveys of people insured with DAK Health Insurance on various health determinants, such as burn-out, alcohol consume, physical activity, back pains, etc.
  • Israel: Cause of death registry – Person level data on causes of death such as specific malignant neoplasms, Diabetes mellitus, Hypertensive disease, chronic lower respiratory diseases, acute myocardial infarction and more.  Causes of death derived from death certificates completed by the physician reporting the death and are coded according to ICD-10. pfeil zu
  • Israel: Individual HMO administrative data - Person level data are collected by four HMOs and covers all Israeli citizens. Data elements are linked by unique identifier, and include information on hospital services, pharmacy purchases, physician visits and laboratory tests and demographic data. Diagnoses, acute as well as chronic are documented for each visit. pfeil zu
  • Israel: National Cancer Registry – Reporting of newly diagnoses cancer cases has been mandatory since 1982. The Israel National Cancer Registry, establish in 1960, complies data on all reported cancer cases, including demographic information, diagnosis (coded according to the international classification of diseases Oncology), date of diagnosis, and stage at diagnosis. pfeil zu 
  • Israel: Severe chronic diseases registry - data on all Israelis receiving treatment for end-stage renal disease, AIDS, Gaucher's, thalassemia and hemophilia, according to the criteria set for each condition by the Ministry of Health. pfeil zu
  • Israel: National hospital services data – Include reports of all hospital encounters, including admissions, emergency room and outpatient clinic visits, day hospitalizations. Data fields include encrypted patient identity number, provider, date of admission and discharge, procedures and diagnosis of chronic diseases and acute care. pfeil zu
  • Israel: 2009 Health survey – The health survey is one of seven health surveys that been conducted in 1977, 1981, 1993, 1996/97, 1999/2000 and 2003/04. The surveys based on a sample of Israeli households contain data on mammography scanning and diagnoses such as cancer, hypertension, heart diseases, diabetes, asthma, chronic pulmonary diseases and digestive diseases. In these surveys there is also data on primary and secondary physician visits, absence of work because of illness or accident, referral to paramedical therapists or alternative medicine practitioners, waiting for surgical operation, influenza vaccination, health insurance, HMOs membership etc. pfeil zu
  • Luxembourg:PSELL3/EU-SILC - this database contains individual information on the state of health perception, the presence of chronic diseases and on limitations of activity due to health problems.
  • United Kingdom: CancerStats has individual level data on cancer incidence, mortality and prevalence by type. Information is available for all cancer diagnosed patients in the UK. pfeil zu
  • United Kingdom: The Health Education Monitoring Survey (HEMS) has several questions on general health and cancer.

Quality (valued outcomes)

Aggregate data

  • Austria: Statistics Austria reports on cancer survival (1-, 5-, 10- and 15- year cumulative relative survival by sex since 1985)
  • Finland:SOTKAnet reports several indicators reflecting the quality/effectiveness of the health services e.g. cancer mortality and suicide rates, or the effectiveness of hospital services by different indicators developed in the PERFECT/EUROHOPE - projects pfeil zu
  • Finland: The PERFECT reporting in THL  (hospitals in figures) provides data on regional and hospital level effectiveness (e.g. 1 year mortality) for a selection of patient/disease groups
  • Finland: The Waiting list reporting system in THL provides region level statistics for waiting lists regarding elective operations and by type of patient category.
  • France:  ICALIN provides composite indicators at hospital-level on safety process and nosocomial infections.
  • France: PLATINES provides data, at hospital-level, on a set of safety and quality indicators (nosocomial infections, patient information, safety measures) and enables comparison between hospitals.
  • Israel: Israel ministry of Health, Department of Medical Services Research - The Department develops and implements measurements of quality of care in general hospitals in Israel, with an emphasis on clinical outcomes such as mortality and re-hospitalizations, nosocomial infections and postoperative complications.
  • Israel: Israel national program for measuring care quality in the community [Hebrew]
    The program began as a cooperative effort between Ben Gurion University and the four Israeli HMOs, and was transferred to the Ministry of Health in 2004. To date, the program has developed 69 routinely measures of care quality in the clinical areas: diabetes, diseases of the heart and circulatory system, asthma, cancer screening, immunizations and pediatric medicine.
  • United Kingdom: The Performance database of the Department of Health can provide aggregate information concerning waiting time statistics for: inpatient, outpatient, cancer waiting times and referral waiting times. Data is available at the aggregate level by PCT, SHA or NHS trusts. pfeil zu

Individual level data

  • Austria: National Cancer Registry maintained by Statistics Austria, contains information on diagnoses and mortality pfeil zu
  • Austria: GAP-DRG (General Approach for Patient oriented Outpatient-based DRG) is a research data base with reimbursement data for outpatient services of sickness funds (social insurance) and Federal Ministry of Health (hospital data) including chronic obstructive pulmonary disease, diabetes, cancer, coronary health disease.pfeil zu
  • Estonia: The National Institute for Health Development hosts the Cancer Registry, which has collected individual information on cancer incidence and survival at national level since 1968.
  • Estonia: Individual administrative health service utilization data for any diagnosis are collected by the Health Insurance Fund since 2000 and it covers all population. Data elements are linked by unique identifier, and include information on hospital stays, physician visits, pharmacy purchases and all health care services provided as well as costs related to these services. Certain service quality indicators can be developed from the existing data.
  • Finland: Finnish Cancer Registry maintained by THL contains information on death diagnoses and mortality pfeil zu
  • Finland: The Waiting list reporting system in THL contains information on observed waiting times and the persons waiting in elective operations
  • Finland: The national discharge register provides patient information including diagnoses and treatments for adverse effects, and deaths within a hospital or institution giving inpatient treatment. pfeil zu
  • Finland: The Finnish Patient Insurance Centre handles the compensation procedures for patient injuries that occur in Finland and maintain a database which includes all these incidents.
  • Finland: National Cancer Registry maintained by THL contains information on diagnoses and mortality
  • France: ENTRED survey directed at people with diabetes has several questions on perceived quality of care by the patients, and healthcare system responsiveness, while a questionnaire addressed to medical practitioners informs on their practice style.
  • France: Baromètre santé surveys, by the National agency for health promotion and hazards prevention (INPES) since 1992. Focus on individual behaviors of patients, practitioners, pharmacists (cancer screenings, tobacco and alcohol consumption). pfeil zu
  • Germany: Quality assurance with routine data (QSR) measures quality of stationary care using anonymous administrative and hospital routine data of patients. QSR is a mutual project of AOK statutory health Insurance and HELIOS clinics, therefore only data of AOK insured patients are considered. pfeil zu
  • Germany:Patient Satisfaction Survey is a representative study in the outpatient care in Germany conducted by WINEG (Wissenschaftliches Institut der TK). pfeil zu
  • Germany:Kompetenznetz Diabetes Mellitus: a study on Impact of social disparities on type 2 diabetes prevalence and quality of diabetes care in Germany (SP22) using survey data Data from two nationally representative health examination surveys of the adult population carried out by the Robert Koch Institute (GNHIES98, DEGS).
  • Israel: 2009 Health survey – The health survey is one of seven health surveys that been conducted in 1977, 1981, 1993, 1996/97, 1999/2000 and 2003/04. The surveys based on a sample of Israeli households contain data on services from which quality measurements can be derived. In these surveys there are data on mammography scanning and diagnoses such as hypertension, heart diseases, diabetes, asthma, chronic pulmonary diseases, chronic digestive diseases, and cancer. In these surveys there is also data on primary and secondary physician visits, absence of work because of illness or accident, referral to paramedical therapists or alternative medicine practitioners, waiting for surgical operation, influenza vaccination, health insurance, HMOs membership etc. pfeil zu
  • Israel: Individual HMO administrative data - Person level data are collected by four HMOs and covers all Israeli citizens. Data elements are linked by unique identifier, and include information on hospital services, pharmacy purchases, physician visits and laboratory tests and demographic data. Quality measurements can be derived from the linked files. pfeil zu
  • United Kingdom: CancerStats has individual information on cancer incidence and survival rates. Information is available at a national level and since 2002. The sample is all cancer diagnosed patients in the UK. pfeil zu

Efficiency / Economy

Physical Inputs (infrastructure)

Aggregate data

  • France: The INSEE website has a variety of studies and statistics available on ambulatory healthcare professionals' demographics, hospitals and equipment
  • France: Statistique Annuelle des Etablissements, which is a complete census of public and private (for profit and not for profit) hospitals since 2004, provided by the Ministry of Health. The primary data source for hospital infrastructure and equipment. pfeil zu
  • France: Eco Santé IRDES data on healthcare supply, available at the national and regional levels; health professionals, pharmaceutical industry, community pharmacies, private and public hospitals, long term and nursing care and expensive technical equipment
  • France: STATISS presents regional and local level data on hospital and primary healthcare capacity, with preset tables enabling easy benchmarking between regions. Hosted by the Ministry of Health.
  • France: PLATINES ward-level information on hospitals, capacity and equipment with a few process quality indicators hosted by the Ministry of Health

Activity/Utilization

Aggregate data

  • Estonia: The Health Statistics and Health Research Database collects and provides aggregate data on health care resources, providers, personnel and expenditure
  • Finland:KELASTO database provides provides annual data on drug reimbursements, sickness leave, rehabilitation and other allowances pfeil zu
  • Finland: Hospital benchmarking database (THL) (hospitals in figures): hospital, hospital specialty unit and regional level data is available for various indicators for activity/utilization: DRGs, bed-days, discharges,outpatient visits. Reporting possible using disease categories, e.g. non-communicable, infectious, mental health. pfeil zu
  • France: Eco Santé IRDES at the national and regional levels, detailed information on hospital and outpatient activity (procedures, doctor visits, number of hospital admissions, average lengths of stay…)

Individual level data

  • Estonia: Individual administrative health service utilization data for any diagnosis are collected by the Health Insurance Fund since 2000 and it covers all population. Data elements are linked by unique identifier, and include information on hospital stays, physician visits, pharmacy purchases and all health care services provided as well as costs related to these services.
  • Finland: The Finnish Health Interview Survey “TERVEYS 2000/2011” and the FinRISK survey administered by THL provides detailed information on self-perceived health, chronic diseases and mental conditions, life quality, health impairment. pfeil zu
  • Finland:The national discharge register and the hospital benchmarking database (THL) contain key inpatient and outpatient data abstractions from the operative systems in hospitals (length of stay, in which ward etc.), patient (age, gender etc.) and medical data (main and additional diagnoses, selected treatments). pfeil zu
  • Finland: AVOHILMO (THL) provides data for all patient encounters within the publicly provided primary care (primary health care centers) in Finland since 2011. pfeil zu
  • France: Health, Healthcare and Insurance Survey (ESPS), contains detailed questions on healthcare utilization, health insurance, forgone care, etc. by socio-economic status pfeil zu
  • France: SNIIR-AM reimbursement database of the National Health Insurance Fund. Exhaustive data on ambulatory care consumption (consultations, diagnostic tests, technical procedures, pharmaceuticals) and private hospitals' activity. Consumptions in public hospitals are in since 2006. pfeil zu
  • France: PMSI hospital database maintained by ATIH (Technical Agency for Hospital Information). Data on hospitals' activity by case mix (DRG system). Data is available from 1996 for MCO database, covering medical, surgical and obstetrics wards —"médecine, chirurgie, obstétrique"; also provides data for hospital at home —"hospitalisation à domicile", HAD— since 2008. pfeil zu
  • Israel: Individual HMO administrative data – Person level data are collected by four HMOs and covers all Israeli citizens. Data elements are linked by unique identifier, and include utilization data on hospital services, pharmacy purchases, physician visits and laboratory tests and demographic data. pfeil zu  

Cost and Expenditure

Aggregate data

  • Estonia: The Health Statistics and Health Research Database collects and provides aggregate data on health care resources, providers, personnel and expenditure
  • Finland: KELASTO database reports the payments for reimbursed drugs, rehabilitation, private health care services,sickness absence day and other special benefits reimbursed by the social security. pfeil zu
  • Finland: The hospital benchmarking database (THL) contains hospital and hospital specialty level total operating costs. pfeil zu
  • France: Eco Santé IRDES at the national and regional levels, fees for practitioners in ambulatory sector, providers' income, macro-level expenditure data by source of funding and by setting and provider

Individual level data

  • Estonia: Individual administrative health service utilization data for any diagnosis are collected by the Health Insurance Fund since 2000 and it covers all population. Data elements are linked by unique identifier, and include information on hospital stays, physician visits, pharmacy purchases and all health care services provided as well as costs related to these services. 
  • Finland: The hospital benchmarking database (THL) contains patient level bottom-up based cost accounting data for c. 30% all hospital inpatient and outpatient care in the country. National DRG cost weights are based on these data. pfeil zu
  • France: Etude Nationale des Coûts (National Costs Study): patient level cost data from about 90 volunteer public and private hospitals. It is used to calculate DRG cost-weights. pfeil zu
  • France: SNIIR-AM reimbursement database of the National Health Insurance Fund. Public expenditure in the ambulatory setting and in private hospitals (fee for service payments), excluding private out-of-pockets payments pfeil zu
  • Israel: Individual HMO administrative data – Person level data are collected by four HMOs and covers all Israeli citizens. Data elements are linked by unique identifier, and include data on cost of hospital services, pharmacy purchases, physician visits and laboratory tests and demographic data. pfeil zu 

Access/Equity 

Aggregate data

  • France: a recent study has analysed geographical access issues
  • Germany: Federal Bureau of Statistics provides annual data on socioeconomic background, income and living conditions of German population. Data is collected through Microzensus annually on regional level.
  • Germany:2011 Census is the largest statistical project in Germany, collecting data on basic information on the population, housing space, education and employment as of 9 May 2011. Data will be collected every 10 years. pfeil zu
  • Germany:SOEB: Reporting on socio-economic development in Germany.
  • Israel:Central bureau of statistics, 2009 Health survey data – Aggregated data on mammography scanning and diagnoses such as hypertension, heart diseases, diabetes, asthma, chronic pulmonary diseases, chronic digestive diseases, and cancer. The data include comparisons by sex, population groups, districts etc.

Individual level data

  • Austria: The “Austrian Health Interview Survey 2006/07” provides detailed information on socio-economic factors, such as income, occupation, education, citizenship and country of birth and contains information on chronic diseases. pfeil zu
  • France: Health, Healthcare and Insurance Survey (ESPS),contains information on the socio-economic background (education, occupation) and income. Allows assessing the distribution of health status and consumption. pfeil zu
  • France: Enquête décennale de santé provides information on socio-economic background and income. pfeil zu
  • France: ENTRED survey directed at people with diabetes has several questions on income levels and financial barriers to access to healthcare by the patients
  • Germany:German Socio-Economic Panel Study (SOEP) is a wide-ranging representative longitudinal study of private households, conducted at the German Institute for Economic Research(DIW). Data provide information on household composition, occupational biographies, employment, earnings, health and satisfaction indicators. pfeil zu
  • Germany:Kompetenznetz Diabetes Mellitus: a study on Impact of social disparities on type 2 diabetes prevalence and quality of diabetes care in Germany (SP22) using survey data Data from two nationally representative health examination surveys of the adult population carried out by the Robert Koch Institute (GNHIES98, DEGS).
  • United Kingdom: The Health Education Monitoring Survey (HEMS) provides information on the socio-economic and demographic characteristics of the respondents. It allows evaluating distribution of health status and cancer incidence.

Health System Design and Context

Austria | Estonia | Finland | France | Germany | Israel | Luxembourg | United Kingdom

International Projects & Data

Projects

Asthma

ISAAC | PDCAAE | GA2LEN | ECRHSIII

Cancer

EPIC | EUROCARE | HAEMACARE | RARECARE | ONCOPOOL| EUNICE| EUROCHIP3 | EuroDRG | EUPHORIC | EuroHOPE

Cardiovascular Disease

EPIC | EROS | EUROCISS | OECD Study | EPIC-CVD | EurHOBOP | MONICA | EuroDRG DuQue | EUPHORIC | EuroHOPE

Diabetes

EPIC | De-Plan | BIRO | EUBIROD

Various Diseases

EUPHORIC ECHIM | EuroDRG | DuQue | ECHO | DISMEVAL | EuroHOPE

Data

Cancer

EUROCARE pfeil zu | EUROSTAT pfeil zu | IARC pfeil zu

Diabetes

Diabetes Atlas pfeil zu

Various Diseases

Global Health Data Exchange pfeil zu | WHO Global Health Observatory pfeil zu | OECD pfeil zu | SHARE pfeil zu