HealthDataNavigator Assess available data on different performance domains across various settings

Germany Data Source

GEDA (Gesundheit in Deutschland Aktuell) is the biggest health monitoring telephone survey in Germany and a key source of information on subjective health status, health-relevant behavior, physical and mental health conditions, utilization of public health services, etc. The aim of this survey is a continuous monitoring of developments of diseases, health and risk behaviors and the identification of trends and changes, and their analysis in relation to current and past interventions.

Governance
  • Robert Koch Institut, Berlin. Abteilung für Epidemiologie und Gesundheitsberichterstattung.
  • Contact Person: Dr. Cornelia Lange. Phone: +49 (0)30 - 18754-3748, Email: gbe(at)rki.de
Access to Database
  • Information available in German and English
  • Database may be accessed for public use on request
Coverage
  • Since 2009
  • Repeated cross-sectional study, telephone survey of around 25 000 individuals in each survey
  • 200 questions about health and living conditions in the survey
  • 3 Surveys completed so far (2009,2010,2012)
  • 95% representativeness of the German population
  • More than 30 health-relevant topics ranging from asthma and diabetes to dental care and vaccinations are questioned [see the full list)
Linkage
  • Not possible
Data Quality
  • Computer assisted telephone survey using the software” VOXCO Interviewersuite 5.4.4.5.
  • Health indicators were developed for health status, the factors influencing the health and health care utilization to make the results of surveys standartised and comparable to each other over the years.
Strengths and Weaknesses
  • Regional differences can be determined

 

DEGS (Studie zur Gesundheit Erwachsener in Deutschland) is a follow-up survey of the German National Health Interview and Examination Survey (BGS98) in 1998. The data provides information on the most widespread diseases, health risk factors and healthcare problems.

Governance
  • Robert Koch Institut, Berlin. Abteilung für Epidemiologie und Gesundheitsberichterstattung.
  • Contact Person: Dr. Bärbel-Maria Kurth. Phone: +49 (0)30 - 18754-3102, Email: kurthB(at)rki.de                
Access to Database
  • Information available in English
  • Database may be accessed for public use on request as of 2014
Coverage
  • Since 2008
  • A combined cross-sectional and longitudinal survey of around 8000 participants
  • Surveys conducted (1998 and 2008). Next survey is planned for 2014.
Linkage
  • Linkage possible between DEGS and BGS98
Data Quality
  • Repeated inclusion of the same participants at multiple points of measurement, longitudinal health data are collected. Such data provide for certain issues insights into the conditions affecting health change during the life course (life-course analyses)
  • Data allow determining incidence rates and analyzing causal relationships
  • Data allow in each wave estimating population prevalence rates for different subgroups of the population (cross-sectional analyses)
Strengths and Weaknesses
  • Project has its own website with information in English: www.degs-studie.de
  • reliable source to observe health trends and make representative statements about changes in health behavior and health development of the population.

 

KIGGS (Studie zur Gesundheit von Kindern und Jugendlichen in Deutschland) is the first comprehensive, nation-wide, representative study of children and adolescents in Germany with the aim to improve the information available on the health of the up and- coming generation and to fill gaps in knowledge.

Governance
  • Robert Koch Institute under the commission of German Federal Ministry of Health.
  • Contact: Robert Koch Institute. Phone: 0800 - 754 78 83(tall free), Email: gbe(at)rki.de
Access to Database
  • Information available in English
  • Database may be accessed for public use on request (Basic Survey)
Coverage
  • Since 2003: Basic Survey (2003-2006), KIGGS WAVE 1 follow up survey (2009-2012), WAVE 2 follow up survey is planned for 2013-2016.
  • Examination survey of about 17600 participants (Basic Survey)
Linkage
Data Quality
  • Data obtained include objective measures of physical and mental health as well as parent- or self-reported information regarding the subjective health status, health behavior, health care utilization, social and migrant status, living conditions, and environmental determinants of health.
Strengths and Weaknesses
  • Project has its own website www.kiggs.de

 

WIDO Monitor is an annual representative survey of persons with statutory health insurance on various relevant health policy issues in Germany. Such surveys are intended to assimilate critics, opinions and suggestions of the statutory insured population of Germany and integrate them in the health policy decision making process.

Governance
  • Wissenschaftliches Institut der AOK
  • Contact Person: Klaus Zok. Phone: +49( 030) -34646-2134, Email: klaus.zok(at)wido.bv.aok.de
Access to Database
  • Information in German only
Coverage
  • Yearly since 1998
  • Representative „stand-alone“ survey of 3 000 statutory insured persons over 18
  • Data collected on various topics, such as integrated health care, supplementary insurance, participation in screening procedures, etc.
Linkage
  • No linkage possible
Data Quality
  • Computer assisted Telephone-Interviews (CATI)

 

G-DRG-Report Browser provides hospital-based case-specific performance data and structural data and delivers reports on cost and performanceprofiles ofindividualDRGs in Germany

Governance
  • Das Institut für das Entgeltsystem im Krankenhaus GmbH (InEK GmbH)
  • Contact Person: Frau Engels. Phone: +49 2241 9382-0
Access to database
  • Information in German only
  • Database is accessible online for free upon agreeing to terms and conditions
Coverage
  • 2 Reports since 2010
  • Data from 249 hospitals
Linkage
  • Not possible
Data Quality
  • Data on number of cases, length of stay, costs, age and gender breakdown, etc. per MCD
Strengths and Weaknesses

 

 

Quality assurance with routine data (QSR) is a research project developed by the Wissenschaftliches Institut der AOK (Wido), the AOK Bundesverband and HELIOS Clinics with the purpose to measure the quality of care in German clinics. The project analyses performances of clinics with the long-term perspective (follow-up) and evaluates the quality of treatments using quality indicators. The quality analysis is based on patient routine data extracted from clinics and AOK Insurance.

Governance
  • WIDO Wissenschaftliches Institut der AOK
  • Contact Person: Dr. Klaus Jacobs. Phone: +49 (030)34646-2393, Email: wido(at)wido.bv.aok.de
Access to database
  • Information in German only (most likely not accessible externally)
Coverage
  • Since 2008 annual QSR-Hospital Reports provide information on results of quality assurance in hospitals
  • Anonymous routine patient data on diseases and surgery, hospital stays, transfers and billed hospital charges for hospitalization
  • Included are hospitals where at least 30 AOK Patients were admitted in the last 3 years
Linkage
  • Linkage possible within this project
Data Quality
  • Data analysis by means of quality indicators
Strengths and Weaknesses
  • Main advantage of QRS is that even data on therapy course and health status after the hospitalization is being included into the quality assurance evaluation
  • First routine long-term monitoring
  • No additional documentation needed for evaluation since the necessary data is already available in the form of administrative and billing data

 

Patient Satisfaction Survey is a representative study that examines patient satisfaction in ambulatory care settings. The overarching focus of this study is "How satisfied are patients in Germany with their doctors? “. A randomized telephone survey of statutory insured adults with private household based on two validated questionnaires: satisfaction in ambulatory care on socio-demographic data.

Governance
  • Wissenschaftliches Institut der der TK für Nutzen und Effizienz im Gesundheitswesen
  • Contact Person: Dr. Beate Bestmann. Phone: 040 6909 3040, Email: Dr.Beate.Bestmann(at)wineg.de
Access to database
  • Information in German only (most likely not accessible externally)
Coverage
  • Since January 2010
  • Randomized telephone interview of 1000 statutory insured adults
Linkage
  • No linkage possible
Data Quality
  • Computer assisted   Telefophone-Interviews (CATI)

 

Europe Survey (Europabefragung): The central aim of the TK Europe Survey is to obtain findings regarding the characteristics and needs of those TK members, who had received planned medical treatment in another EU country in 2008 and whether they would opt for planned treatment in EU member states in future. Those persons selected for the survey were all TK members not resident abroad and over the age of eighteen at the qualifying date and who had received treatment in another EU country on at least one occasion within one year.

Governance
  • Wissenschaftliches Institut der der TK für Nutzen und Effizienz im Gesundheitswesen
  • Contact Person: Dr. Caroline Wagner, Phone: +49(040) 6909 -2447, Email: Dr.Caroline.Wagner(at)wineg.de
Access to database
  • Data most likely not accessible externally
Coverage
  • Since 2009, three surveys conducted so far (2009, 2010, 2012).
  • 16,446 questionnaires in 2009; 13,276 in 2010 and 40.000 sent out in 2012 (response rate not known).
  • Input on socio-demographic data, country of treatment, type of treatment, reasons for choosing treatment abroad(if planned), Satisfaction, type of payment, etc.
Linkage
  • Linkage possible within the TK insurance
Data Quality
  • A variable part of the questionnaire will be adjusted with changing topics and will be constantly updated
  • To minimize possible distortions, only valid percentages are stated in the presentation of the survey results, i.e. missing values were excluded.
Strengths and Weaknesses
  • Contribution to further research in the field of the still young European health care sector for planned EU cross-border treatments.

 

2011 Census is the largest statistical project in Germany right now. The Census is conducted by the Federal Statistical Office and the statistical offices of the Länder. The aim is to provide the most accurate snapshot possible of basic information on the population, housing space, education and employment as of 9 May 2011.

Governance
  • Statistisches Bundesamt and the Statistisches Amt of the Länder
  • Conact Form: https://www.zensus2011.de/Kontakt
  • Phone: +49 611 75 2011, Email: zensus2011(at)destatis.de
Access to database
  • Not accessible
Coverage
  • Since 2011 every 10 years
  • Accurate information on demographic data, socioeconomic data, data on housing and living conditions
  • For the Census of Buildings and Housing interrogation of all 17.5 million owners
  • For the Household Survey, 10 percent of the population were randomly selected and interviewed
Linkage

 

Data Quality
  • Mixed-mode method that collects data from multiple sources and combines a complete enumeration with sample surveys
  • Response to all of the surveys was to ensure the collection of high-quality data
Strengths and Weaknesses
  • Provides the most accurate snapshot of basic information on the population, housing space, education and employment as of 9 May 2011
  • Challenge in linking the individual data sources

 

German Socio-Economic Panel Study (SOEP) is a wide-ranging representative longitudinal study of private households. Its aim is to provide panel data that allow users to conduct longitudinal and cross-sectional analyses with state-of-the-art scientific methodologies to better understand mechanisms underlying human behavior and social change.

Governance
  • Deutsches Institut für Wirtschaftsforschung(DIW)
  • Contact Person: Uta Rahmann, Phone: +49 30 89789‑287, Email: urahmann(at)diw.de
Access to database
  • Data available in English
  • SOEP data are available free of charge as “scientific use files”
Coverage
  • Yearly since 1984
  • Nearly 11,000 households, and more than 20,000 persons interviewed each year
  • Research topics include household composition, occupational biographies, employment, earnings, health and satisfaction indicators, etc.
Linkage

 

Data Quality
  • questionnaire are constantly updated and adjusted to changing topics
Strengths and Weaknesses
  • Longitudinal panel survey allows to capture changes

 

Nationale Verzehrsstudie II (NVS II) is a representative study which delivers data on food consumption and nutrient intake of 14 - to 80-year-old population in Germany. Along with nutrition surveys, anthropometric measurements were taken. Information on physical activity and other lifestyle factors, as well as taking supplements was also collected within the study.

Governance
  • Max-Rubner Institut (MRI) and Bundesministeriums für Ernährung, Landwirtschaft und Verbraucherschutz (BMELV)
  • Contact Person: Dr. Thorsten Heuer Phone: +49 721-6625-266, Email: SUF.NVS(at)mri.bund.de
Access to database
  • Information in German
  • There are 6 datasets, all can be accessible as scientific-use-file upon request and for scientific use only. A charge of 75 - 150 € is applied for each dataset.
Coverage
  • Over 20.000 Citizens were interviewed, data collected between 2005 and 2006
  • Data on food consumption, nutrition knowledge, purchasing habits, cooking skills, etc.
Linkage

 

Data Quality
  • Data acquired with various methods: personal interviews, computer-assisted interviews, questionnaires, body measurements, telephone interviews
Strengths and Weaknesses
  • Results to be transferred to targeted nutrition counseling concepts and prevention programs.
  • Certain population or high-risk groups are not covered in sufficient detail.
  • Study has its own website www-was-esse-ich.de

 

Nationales Ernährungsmonitoring (NEMONIT) is a study in continuation of Nationale Verzehrsstudie II with the purpose of a long-term observation of the nutrition behavior in Germany.

Governance
  • Max-Rubner Institut (MRI) and Bundesministeriums für Ernährung, Landwirtschaft und Verbraucherschutz (BMELV)
  • Contact Person: Dr. Thorsten Heuer. Phone: +49 721-6625-266, Email: SUF.NVS(at)mri.bund.de
Access to database
  • Information in German mainly
  • Data upon request and for scientific use only
Coverage
  • Since 2008
  • 2000 persons to be interviewed each year from those who participated in the National Nutrition Survey II (NVSII)
  • Information collected on food consumption, nutrition habits, physical activity, socioeconomic data, etc.
Linkage

 

Data Quality
  • Information is acquired with 24-h-recall method
  • EPIC-SOFT software program used (software first developed for the EPIC study)
Strengths and Weaknesses
  • Continuous nutrition reporting is established for the first time in Germany
  • Contribution to European Networking and to harmonization of health and nutrition reporting on national and European level