HealthDataNavigator Assess available data on different performance domains across various settings

Israel Data Source

 

Israel National Population Register contains data on all Israeli residents, including identity number,  surname, first name and previous name,  names of parents, date and place of birth, gender, personal status (single, maried, divorced or widowed), spouse's name, names, dates of birth, and gender of children, past and present nationalit(ies), address, date of entry into Israel, date of becoming a resident

Governance Israel Ministry of Interior
Access to database Available for use within the organization, other government agencies/research organizations may obtain access after project approval
Coverage Total Israeli population, 1948-present
Linkage Possible using unique national identifier
Data quality Very accurate
Strengths and weaknesses Data are available only to the custodial organization or in situations in which a linkage project has been approved

 

Israel National Cancer Registry 

Reporting of newly diagnosed cancer cases has been mandatory in Israel since 1982. The Israel National Cancer Registry, established in 1960, compiles data on all reported cancer cases, including  demographic information,  diagnosis (coded according to the International Classification of Diseases—Oncology), date of diagnosis, stage at diagnosis.

Governance Israel Ministry of Health, National Disease Control Center
Access to database Available for use within the organization, other government agencies/research organizations may obtain access after project approval
Coverage From 1961 onward.  Reporting mandatory from 1981 onward.  Registry
Linkage Possible using unique national identifier
Data quality Completeness of the registry is estimated at approximaely 93% for solid tumors
Strengths and weaknesses Data are available only to the custodial organization or in situations in which a linkage project has been approved

 

National hospital services data

Includes reports of all hospital encounters, including admissions, emergency room and outpatient clinic visits, day hospitalizations.  Data fields include encrypted patient identity number, provider, date of admission, date of discharge, diagnoses and procedures.

Governance Tziona Chaklai,Office of Information and Computing, Israel Ministry of Health [Hebrew]
Access to database Available for use within the organization, which produces periodic summary reports
Coverage Most Israeli hospitals
Linkage Not possible, hospitals report to the registry using a blinded identifier
Data quality We are not aware of data quality issues
Strengths and weaknesses

Data are available only to the custodial organization or in situations in which a linkage project has been approved

 

2009 Health Survey

National health survey 2009 is one of seven health surveys that been conducted in 1977, 1981, 1993, 1996/97, 1999/2000 and 2003/4, with a cooperation between Israel National Bureau of Statistics and Israel Ministry of Health. The surveys examine the following issues: absence from work because of illness or accident, waiting for surgical operation, primary and secondary physician's visits, referral to paramedical therapists or alternative medicine practitioners, hospitalizations, mammography and MRI, Influenza vaccination, health insurance, HMOs membership etc.

Governance Israel National Bureau of Statistics
Access to database Available for use within the organization, other government agencies/research organizations may obtain access after project approval
Coverage Sample of 8728 Israeli households which include 28968 persons 
Linkage Not possible
Data quality Good
Strengths and weaknesses It is a sample and conducted periodically

 

Cause of death registry

Causes of death for persons living in Israel.  Causes of death are derived from death certificates completed by the physician reporting the death and are coded according to ICD-10 by the Israel National Bureau of Statisitcs

Governance Israel National Bureau of Statistics
Access to database Available for use within the organization, other government agencies/research organizations may obtain access after project approval
Coverage All deaths occurring among residents of Israel, not including deaths of citizens living abroad or casualties of war
Linkage Possible using unique national identifier
Data quality Data are updated using other sources of information
Strengths and weaknesses Depends on quality of data reported by hospitals/others. Cause of death known not to be reliable.

 

Severe chronic diseases registry

Israeli law provides for payment beyond the normal capitation rate to HMOs for members with the following illnesses classified as "severe":  end-stage renal disease, AIDS, Gaucher's, thalassemia and hemophilia, because of the high costs of treating these illnesses.  The severe chronic diseases registry compiles data on all persons for whom HMOs are entitled to receive additional payment.

Governance Israel Ministry of Health, National Disease Control Center [Hebrew]
Access to database Available for use within the organization
Coverage All Israelis receiving treatment for  end-stage renal disease, AIDS, Gaucher's, thalassemia and hemophilia, according to the criteria set for each condition by the Ministry of Health
Linkage Possible using unique national identifier
Data quality Reports are received from treatment providers, HMOs and from the renal disease, AIDS, Gaucher's, thalassemia and hemophilia registries maintained by the Ministry of Health.  The registry verifies that each person meets the criteria for the diagnosis (including medications purchased, site, duration and continuity of treatment) and that the person is recognized by the National Insurance Institute.
Strengths and weaknesses The registry is maintained for administrative, rather than research purposes.

 

The Israel National Very Low Birth Weight Infant Database

The Israel National Very Low Birth Weight (VLBW) Infant Database compiles data on infants with birth weights less than or equal to 1500 g. The database includes information on the socio-demographic background of the parents, obstectric history of the mother, complications and treatment received during the current pregnancy, course of delivery and condition of the infact at delievery, treatment provided to the infant, and condition of the infact at discharge.

Governance Israel Ministry of Health, Israel Center for Disease Control [Hebrew]
Access to database Available for use within the organization.  Qualified researchers may submit proposals for research projects using the database
Coverage All infants of birth weight 1500 g or less who are born alive in any of the country's 28 neonatal units, from 1995 onward. The database contains data from >99% of all VLBW infants in Israel
Linkage Database does not include identifiers for patients or treating hospitals
Data quality Information reported to the database coordinator is checked for missing items and logical errors. Patient information is linked to the Israel national birth registry and data on missing infants are requested from the birth hospital. Data are collected for all infants until discharge or death
Strengths and weaknesses Provides a basis for reseach and interventions aimed at reducing the incidence of VLBW and associated mortality and morbidity.  Does not include stillbirths or abortions

 

Israel National Immunization Registry [pilot] 

Governance
Israel Ministry of Health, Israel Center for Disease Control
Access to database Available for use within the organization
Coverage As of January 2010, 120 well-baby clinics are connected to the registry, providing data on approximately 50,000 children
Linkage Possible using unique national identifier
Data quality Automatic entry of patient identifier (through linkage to Ministry of Interior population register) and details on vaccines (through linkage to a vaccine products database) avoids due to manual data entry
Strengths and weaknesses Pilot project with limited coverage

 

National Trauma Registry

Founded in 1995 to improve the treatment of trauma patients at the hospital and national level, the registry collects detailed information on Israelis receiving hospital treatment for trauma, including demographic data, details on the nature of the injury, treatment received in the field, procedures, hospital course and condition at discharge

Governance Gertner Institute for Epidemiology and Health Policy Research[Hebrew]
Access to database Available for use within the organization
Coverage Receives data from 19 hospitals, including all six national trauma centers and 13 regional regional trauma centers.  The registry includes data on all patients meeting the following criteria: 1) suffered an injury coded as ICD-9 CM 800-959.9, 2) admitted to the reporting hospital, died in the emergency department or were transferred from the hospital to another hospital as a result of injuries
Linkage Possible using unique national identifier
Data quality We are not aware if data quality issues
Strengths and weaknesses Not all trauma centers report to the registry.  The registry does not include patients who died in the field or in the course of transport to a hospital, those who were not admitted, and those who arrived in an emergency department more than 72 hours after injury

 

Health maintenance organization (HMO) data

The following person-level data maintained by the four different HMOs: membership/demographic data, hospital services, pharmacy purchases, physician visits and laboratory tests. 

Governance

Health Care Services Clalit

Maccabi Health Care Services

Meuhedet

Leumit

Access to database The availability of comprehensive linked data on health care utilization for members enables the HMOs to conduct program evaluation and health services research.  Furthermore, the potential exists for projects linking data provided by outside bodies (for example, government agencies, research organizations and hospitals) to the data held by the HMOs, once safeguards have been built in to protect confidentiality of member data, and the project has received approval by a Helsinki committee (the Israeli equivalent of an Institutional Review Board).
Coverage Four HMOs obligate to provide medical coverage to residents of Israel. By 1995 All of the HMOs maintain computerized databases capturing most patient services, have an electronic medical record, (although the exact parameters collected by each varies),  receive vital status information from the National Insurance Institute on current members and are notified when members switch HMOs
Linkage Possible by using unique national identifier
Data quality Good
Strengths and weaknesses   Very comprehensive database since 1995. Services not in the national health basket (very few) are not included in the database.